Cerebral Palsy is a condition that is often so multi-faceted that it can be hard to keep an eye on all of the factors that affect a child. Embracing a life with Cerebral Palsy requires planning, organization, perspective, adaptation and lots of inspiration. An organized, comprehensive plan of care can help organize time and manage outcomes.
About the care plan
Raising a child with Cerebral Palsy creates fresh nuances for the whole family. In the process, parents come in contact with many players that have a stake in assisting them to manage their child’s health and welfare.
MyChild™ has devised the Cerebral Palsy Care Plan in an effort to provide a structure, or an organizational chart for parents seeking guidance as they look to embrace a life with Cerebral Palsy.
Through many online and phone inquiries, we come to realize that although there are many agencies, organizations, businesses and sole-practitioners who offer assistance, the big picture perspective is often missing.
A doctor, therapist, financial planner, lawyer, school teacher and insurance agent often have advice, based on their expertise, but little is offered as a game plan on “Where do I start? What’s available to my child? And, am I on the right track?”
MyChild™ offers the Cerebral Palsy Care Plan as a way of organizing efforts, gaining perspective and embracing a future with Cerebral Palsy.
It would be overwhelming to sit, from point A to point Z and accomplish all the items on the list. Instead, the Cerebral Palsy Care Plan is designed as a guide or a reference to organize the journey, over time.
The MyChild™ website is a place to visit often to gain perspective, find insight, and more efficiently organize plans for your child and for your family. Feel free to refer MyChild™ to others if you feel they may in some way benefit by the information, resources, expert referrals, and unlimited inspiration we offer.
How to use the Cerebral Palsy care plan
The Cerebral Palsy Care Plan acknowledges eight essential components to a child’s care, which will evolve as the child grows and develops. There are items planned at home, at the doctor’s office, at school, through governmental assistance, community support, and with the help of friends and professional experts that will shape a child’s future.
Inherent in each of these initiatives are opportunities available to help a family meet their child’s needs. Not all of these are well-known, or easily found in one source, until now. Nor does every child require assistance in every aspect detailed in the plan.
As you work with service providers in each of these areas you will be forming goals for your child, and plans to meet those goals. Long-term goals for optimizing health and life span include:
- Optimize Mobility
- Manage Primary Conditions
- Control Pain
- Prevent and Manage Complications, Associative Conditions and Co-Mitigating Factors
- Maximize Independence
- Enhance Social and Peer Interactions
- Foster Self-Care
- Maximize Communication
- Maximize Learning Potential
- Enhance Quality of Life
Medical practitioners, service professionals, government agents, community supports and family will undoubtedly add specific goals and plans to record in the child’s plan, as well, for treatment plans, caretaking initiatives, rehabilitation, and benefit programs.
Once care plan goals are created, they can be categorized in the following ways. These categories were chosen as they pertain to the specific needs of medical treatment, care at home, government assistance, community assistance, education, or various services which may be required to manage Cerebral Palsy through the individual’s entire lifespan.
For comprehensive details about any of the items listed below, click on the term to be taken to the topic page.
- Care at home
- Home health care services
- Child care and respite
- Personal assistance and service dogs
- Nutrition and Meal plans
- Mobility and rehabilitation plan
- Sports, recreation and play
- Socialization plan
- Accessible homes and home modifications
- Accessible vehicles and vehicle modifications
To learn more, visit Care at Home.
- Obtain diagnosis and acquire medical records
- Assemble a care team
- Assess abilities
- Determine goals
- Create, implement and monitor a coordinated comprehensive medical care plan
- Maintain records
To learn more, visit Six-Step Treatment Plan for Cerebral Palsy.
- Medication and drug therapy
- Assistive technology
- Complementary and alternative medicine
To learn more, visit Treatment of Cerebral Palsy.
- Children’s Health Insurance Plan, or CHIP
- Energy Assistance (Weatherization Assistance Program or Low Income Energy Assistance Program)
- Medicaid and Medicaid Waivers
- Supplemental Nutrition Assistance Program, or SNAP
- Supplemental Security Income, or SSI
- Social Security Disability Insurance, or SSDI
- Temporary Assistance for Needy Families, or TANF
- Women, Infant and Children Supplemental Nutrition Program, or WIC
To learn more, visit Government Assistance.
- Individualized Family Service Plan, or IFSP – 0 to 2 years
- Individualized Education Evaluation, or IEE
- Individualized Education Program, or IEP – 3 to 21 years
- Individualized Health Plan, or IHP
- Individualized Transition Plan, or ITP – Transition into Adulthood Plan – 16 to 21 years
- Early Intervention – Birth to 2 years
- Early Head Start – Birth to 2 years
- Early Childhood Intervention – 3 to 5 years
- Head Start – 3 to 5 years
- Kindergarten to Secondary Education – 6 to 16 years
- Transition Planning for Adulthood – 14 to 16 years
- Transition into Secondary Education/Adulthood – 16 to 21 years
- MyChild™ Call Center Assistance
- MyChild™ Online Inquiry
- MyChild™ Product and Service Provider Lists
- MyChild™ Resource Kits
- MyChild™ Cerebral Palsy Foundation/li>
- MyChild™ Inspiration
- The CP Blog
- The CP Forum
- The CP Facebook
To learn more, visit MyChild™ Resources.
- Non-government organizations, or NGOs
- Community-based organizations, or CBOs
- Faith-based organizations, or FBOs
- Cerebral Palsy organizations
- Disability organizations
- Community Support: Role of Federal Government
- Community Support: Role of State and Local Government
To learn more, visit Community Support and Funding Service.
- Legal services
- Health insurance
- Estate planning, wills and trusts
- Financial planning and tax preparation
- Post-Secondary Transition
- Career Skill Development
- Life Skills
- Independence and Self-Sufficiency
- Housing Assistance
- Money Management
- Transportation and Driving
- Social Security Disability Insurance
To learn more, visit Transitioning Into Adulthood.
- Employment and Career Advancement
- Financial Independence
- Health and Fitness
- Hobbies, Interests and Activities
- Dating and Relationships
- Safety and Personal Protection
- Sports, Recreation and Play
To learn more, visit Maturing with Cerebral Palsy.
To learn more about the plan, visit The Plan.
Finding a child care program or facility that meets the needs of a child with Cerebral Palsy is an expensive undertaking. Luckily, families that meet a certain set of criteria can take advantage of government funding and supports.
Government-Assisted Child Care
Child Tax Credits
Ask your tax consultant if you are eligible for:
Ask your employer if they offer pre-tax accounts for child and dependent care.
Child and Adult Care Information
Child Care Resources
Do you have doubts that someone else can care for your child?