Recent Diagnosis

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Even after a long diagnosis period where parents had begun to realize the possibility, the finality sinks in as they hear the words they were hoping they wouldn’t, “Your child has Cerebral Palsy.” It’s difficult to hear that their hopes for their child’s health are now altered. They feel relief that their child will finally receive treatment and supports, but sadness for their child’s future unknowns. A myriad of emotions soon give way to one central question, “What does this mean for my child, and for my family?”

A diagnosis of Cerebral Palsy begs more questions that it does answers; severity levels and the numerous ways brain injury can affect a child’s ability to coordinate movement mean that no two cases are identical. A diagnosis could mean mild mobility challenges, or profound physical and developmental symptoms.

Once a child is diagnosed, there’s a protocol of medical appointments and early interventions that should be implemented. Neurologists determine the type of brain injury, and it’s affect on cognition while orthopedic surgeons assess the severity level and degree of impairment. Therapists deploy rehabilitative measures, while gastroenterologists determine oral motor and digestive complications. Speech and language pathologist address communication difficulties. Registered dietitians ascertain feeding regimens. And, parents work closely with their child’s primary care physician to ascertain the child’s future health care needs.

This is the stage of life’s journey for acceptance and starter steps. It feels like climbing a mountain, but at MyChild™, we’re here to help you reach the summit and beyond.

About this stage of the journey

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HELP

Many parents find it difficult to explain their emotions and thoughts at the time they receive their child’s diagnosis, and in the years that ensue. That’s understandable. It’s a life-altering moment often filled with feelings of sadness, helplessness, shock, anxiety, disbelief, and confusion. But, that gives way to strength, joy, tolerance, and triumphs. It may not be the expected journey we had for our children, but it is a beautiful journey, nonetheless.

Have questions? Call (800) 692-4453

Helpful suggestions:

  • Learn as much about cerebral palsy as you can.
  • Record what you learn about your child’s unique condition in a journal for future reference. Attach test and evaluation results.
  • Work with your child’s primary care physician to develop a care plan.
  • Implement the care plan by scheduling doctor and therapy appointments.
  • Visit your local public school system to ascertain whether your child should enroll in early intervention or other special education offerings.
  • Become familiar with your health insurance plan to determine whether it is the best choice for your family considering that your child will require additional care throughout his or her lifetime.
  • Start a record keeping system.
  • Seek support if, and when, needed.
  • Get started with government benefits.