March 17, 2007
PERC: New Procedure For Treating Cerebral Palsy
PERC or Percutaneous Muscle Lengthening procedure. The surgery involves making small incisions along the tendons of the leg muscle, with hope that spasticity will be loosened and walking will be easier for children with cerebral palsy.
The procedudure takes about 1 hour to perform and does have very promising results.
In depth look at the surgery: http://www.pediatric-orthopedics.com/Treatments/Perc_Lengthening/perc_lengthening.html
February 26, 2007
Feldenkrais Method for Children with Cerebral Palsy
Feldenkrais is rapidly gaining popularity as a form of therapy for children with cerebral palsy. Although many insurance companies will refuse to pay, some physiotherapists are trained in using the Feldenkrais method and incorporating it into their therapy sessions.
Feldenkrais is about become self aware and focusing on physical movement. It is more often used to complement therapy and not on its own. Athletes use it to enhance performance, and many people report improvement using Feldenkrais after a stroke. More recently Feldenkrais has been used with children who are living with cerebral palsy.
For more information visit http://www.feldenkrais.com/.
February 22, 2007
Compression Garments such as Theratogs and Benik “Wearable Therapy”
A wearable compression garment such as the ones made by Theratogs and Benik are often used in treatment of children with cerebral palsy. The garments are worn and then Velcro straps are used to provide support. The use of compression garments is also often called wearable therapy and it also helps with stability- helping with movement.
Many have achieved good results, specifically children with these conditions:
- Ataxia
- Hypotonia
- Intoed gait
- Out-toed gait
- Athetosis
- Weakness
- Muscle imbalance
The suit is worn under clothing and fits like a second skin. It looks a bit like a leotard. Using straps, different areas are given support.
To find out how to order you can visit these suppliers:
http://www.abilitations.com/
https://theradaptcom.terrasite.com/new/secure/frameMain.htm
February 15, 2007
Botox Injections and Cerebral Palsy
Botox – or Botulinum Toxin – is better known as the the wrinkle eliminator used by cosmetic surgeons. It is now being used to treat young children with cerebral palsy. How does botox work and help some one with cerebral palsy? By injecting it into the muscles of the hip joints of young children, it prevents the use of the muscles that my be causing a painful gait or movement that may cause hip and joint problems down the road. By stopping the use of those muscles it encourages the development of others, resulting in less pain and more “normal” movement.
The ideal age for treat is around the age of 3-4 years.
For more information on how Botox can help your child please contact one of our live CareCenter Specialists.
December 27, 2006
Conductive Education Center Locations in USA and Canada
Conductive education or CE, is an educational system that has been specifically developed for children and adults who have motor disorders of neurological origin such as cerebral palsy. Conductive Education is a holistic, educational approach to helping idividuals learn to achieve their own personal goals, experiencing greater independence and exercising choice. Improvements are seen, not only in physical independence, but also in social competence, self-esteem and for gaining a greater sense of personal achievement.
Conductive Education Therapy Center Locations in North America: USA and Canada
Note: If we have left off a center that offers Conductive Education therapy or if information below is incorrect or out of date, please let me know by posting in comments section. I will update promptly. Thanks!
INTER-AMERICAN CONDUCTIVE EDUCATION ASSOCIATION (IACEA)
c/o Pat Riley, CEO
P.O. Box 3169, Toms River, NJ 08756-3169 USA
United States Only Toll-Free (800) 824-2232
or (732) 797-2566 or Fax (732) 797-2599
Email: info@iacea.org
Web Site: http://www.iacea.org
NATIONWIDE
Cerebral Palsy Solutions, Coaching & Consulting, Inc.
c/o Judit Roth
Address: 4445-B Breton SE Box 176
Kentwood, Michigan 49508
Tel: (616) 656-3646
Toll-Free Nationwide (800) 611-0096
E-mail: info@conductiveedconsulting.com
Website: www.conductiveedconsulting.com
ALABAMA
Making Strides of Alabama, Inc.
c/o Phyillis Templeton
5184 Caldwell Mill Road, Suite 204-309
Birmingham, AL 35244
Tel: (205) 980-0447
Fax: (205) 980-8848
Email: Info@making-strides.org
Website: www.making-strides.org
ARIZONA
Individual Achievements Association
C/O Mary Hare
2702 N. Golden W. Ave
Tucson, Arizona 85749
Mary Hare: Tel: 520-749-1065
Email: Mhare63@cox.net
Beckie Gibson Tel: 520-327-0488
Email: QHT@ULTRASW.com
www.aziaa.org
ARKANSAS
Conductive Education of Northwest Arkansas, Inc.
c/o Leslie Porter
1200 North 40th Street
Springdale, AR 72762
Tel: (479) 725-1015
Email: arkansasce@ucpcark.org
The Next Step, Inc.
C/O Ryan Bailey, Director
1527 South Boulevard
Conway, AR 72034
Tel: 501-238-5463
Email: thenextstepinc@yahoo.com
www.thenextstepinc.org
CALIFORNIA
Peninsula Outreach Programs, Inc.
Pops/CECC & Popskids
c/o Ursula Miller
2995 Woodside Rd., Suite 400-439
Woodside, CA 94062
Tel: (650) 454-0207 Fax: (650) 851-1197
Email: Ursala@popskids.org
Website: http://www.popskids.org
Kids for Conductive Education
c/o Peggy Tinder
15 Muir
Irvine, CA 92620
Tel/Fax: (949) 552-8748 (year around program)
Email: kidsforce@sbsglobal.net
Website: http://www.kidsforce.org
Santa Barbara, Can-Do-Camp for Conductive Education
c/o Eric & Stacy Baron
536 Calle Aparejo
Santa Barbara, CA 93111
Tel: (805) 964-8189
Email: Seebaron@AOL.com
Conductability, Inc.
c/o Sheila James
373 Cucamonga Avenue
Claremont, CA 91711 (year around program)
Tel: (909) 621-1125 (older children)
Cellular: (909) 266-4462
Email: SMJhere@AOL.com
Conductiva-Comprehensive Conductive Education Services
Program Director: Krisztina Abonyi Bernstein
Office address: 285 Willow Road, Menlo Park, CA 94025
Telephone: (408) 318-3456
e-mail: conductiva@earthlink.net
web: http://home.earthlink.net/~conductiva
CONNECTICUT
Feroleto Children Development Center
C/O Donna Kennedy, Director
95 Merit Boulevard
Trumbull, CT 06611
Tel: (203) 375-6400
www.stvincentsspecialneeds.org
FLORIDA
Conductive Education Centers of Orlando
A Non-Profit 501c.3 Charitable Organization
C/O Krista Krupinski, Director
4800 Howell Branch Road
Winter Park, Florida 32792
Tel: (407) 671-4687
Fax: (407) 647-3833
Email: Krista@cecffl.org
www.cecfl.org
Conductive Education Center of South Florida
C/O Tom McCormick
5990 NE 6th Avenue
Fort Lauderdale, Fl 33334
Tel: 954-491-0057
Email: Krista@cecfl.org
The Achievers Program, Inc.
C/o Tegdra Samuel
6001 SW County Rd 141
Jasper, Fl 32052
Tel: 386-792-4048
Email: ebsmoov@alltel.net
GEORGIA
A Step to Independence, Inc.
C/0 Karen Fowler
P.O.Box 1166
279 Hebron Church Road
Dacula, GA 30019
Tel:678-687-2207
Email: Dknfowler@AOL.com
ILLINOIS
The Center for Independence Through Conductive Education
c/o Patti Herbst, Director
100 West Plainfield Road
Countryside, IL 60525
Tel: (708) 588-0833
Email: pcherbst_1@MSN.com
www.center-for-independence.org
INDIANA
Jackson Center for C.E.,Inc.
C/O Dale F. Depoy
9928 N. Woodland Drive
Mooresville, In 46158
Email: depoy@uwci.org or depoyl@AOL.com
Tel: (317) 921-1245
P.O.Box414
Mooresville, In 46158
Louisiana
A New Ray of Hope
C/O Yvetti Pierre-Ancar
P.O. Box 5670
Slidell, LA 70469
Tel: 985-643-6504
Email: anewrayofhope@bellsouth.net
MASSACHUSETTS
Boston Area Conductive Education
c/o Faye Ginsberg
304 Waban Avenue
Newton, MA 02468
Tel: (617) 332-1632 (year around program)
Email: FSG20002@AOL.com
MICHIGAN
Acquinas College – Conductive Learning Center
C/O Denny Williams-Dean of Education
C/O David Dvorak-Director
2428 Burton Road, S.E.
Grand Rapids, MI 49546
Tele: 616-459-8281 Ext 5150
Tele: 616-632-2429
Email: admissions@aquinas.edu
Email dvordav@aquinas.edu
www.aquinas.edu/pohi
Children Academy of Achievement
C/O Carrie Smith, Director
1382 Potomac
Rochester Hills, MI 48306
Tel: 248-528-0988
Tel: 248-321-8677
Email: admin@conductive-education-academy.com
Web: www.conductive-education-academy.com
Conductive Education Center of Metro-Detroit
c/o David Sunderlink
153 Pleasant St
Romero, MI 48065
Tel: (586) 752-7476
Email: dsunderlik@kroff.com
Website: www.cecmd.com
MINNESOTA
Partners In Excellence, Inc. PL+US Program;
Formerly Minnesota Center For Conductive Education
c/o Sandy Schrom, Director
1947 W. Burnsville Parkway
Burnsville, MN 55337
Tel: (952) 736-1490 (year around program)
Fax: (952) 736-1491
Email: info@mncce.com
Website: www.mncce.com
NEW JERSEY
INTERNATIONAL HEADQUARTERS
INTER-AMERICAN CONDUCTIVE EDUCATION ASSOCIATION (IACEA)
c/o Pat Riley, CEO
P.O. Box 3169, Toms River, NJ 08756-3169
United States Only Toll-Free (800) 824-2232
Tel: (732) 797-2566
Tel: (732) 797-2599
Email: info@iacea.org
www.iacea.org
Association for Conductive Education & Related Services
P O Box 217
Middletown, NJ 07748
Tel: (908) 272-9675 or (609) 426-0491
Email: acersi@AOL.com or info@acersi.org
Web Site: http://www.acersi.org
One Little Step, Inc.
C/O Mimi Rosa
31 Eton Drive
Sewell, N.J. 08080
Tel: 856-264-4246
Fax: 856-740-5173
Email:info@onelittlestep.org
WebSite:www.onelittlestep.org
NEW MEXICO
Conductive Education of New Mexico
c/o Kim Buckle, Director
2433 Metzgar Southwest
Albuquerque, NM 87105
Tel: (505) 873-0333
Tel: (505) 821-2057
Email: kathyhedemann@comcast.net
NEW YORK
Standing Tall, Inc.
c/o Eszter Friedman, Director
200 Riverside Boulevard, Unit # 2, (located on West 69th Street) (ages 1-12)
New York, NY 10069 (year around program)
Saturday Program available for 2004-2005 school year
Tel: (212) 787-8315
Email: info@standingtall.org
Website: www.standingtall.org
NORTH CAROLINA
Sandhills Conductive Education Foundation
c/o Barbara Levin
P.O. Box 305
Pinehurst, NC 28370 (year round)
Tel: (910) 528-1851
Fax: (910) 295-3996
Email: barbaralevin@excite.com
Website: www.scef.net
OHIO
Rising Star Elementary School
C/O Ben Chmielewski
3281 Avalon Road
Shaker Heights, OH 44120
Tel: 216-577-0114
Email: info@risingstarelementary.org
Web: www.risingstarelementary.org
Miracles Unlimited, Inc.
c/o Tracey Tatar
9892 Deltona Drive
New Middletown, OH 44442
Tel: (330) 542-2854
email: tatartracey@AOL.com
Sara’s Garden
C/O Judith Burkeholder
16701 AC
Wauseon, OH 43567
Tel: 419-267-5134
Email: Judith_burkeholder@hotmail.com
PENNSYLVANIA
ACHIEVA
c/o Linda J. Wright. PhD
711 Bingham Street
Pittsburgh, PA 15203 (year around program / birth to 21 years old)
Tel: (412) 995-5000 extension 420
Fax: (412) 995-5001
Email: lwright@achieva.info
Website: http://www.achieva.org
The Jenny Rose Specialized Therapy Center, LLC
c/o Elaine R. Parker
The Pocono Mountain Region, Pennsylvania
296 East Brown Street, Suite B
East Stroudsburg, PA 18301
Tel: (570) 421-3415
Toll free 888-233-5540
This location offers HBO (Hyperbaric Oxygen) Therapy
Conductive Education of Pittsburgh
c/o Tina Calabro
7010 Thomas Boulevard
Pittsburgh, PA 15208 (summer camp only)
(412) 361-3997
Email: tccalabro@AOL.com
Website: http://www.ce-pgh.org
South Carolina
The GRACE Center
C/O Stephanie Reed
3 Cardinal Court, Suite 285
Hilton Head Island, SC 29926
Tel: 843-341-2726
Email: info@thegracecenter.org
Web: www.thegracecenter.org
TEXAS
A Child Can Do All Things,Inc
C/O Patty Simmons, Director
7000 Independence Pkwy, Suite160
Plano, TX 75025
Tel: 214-227-7594
Cell: 214-212-0068
Email: cbutler@accdats.com
Tennessee
Miracle Milestones, Inc
C/O Jennifer Patton
P.O. Box 681178
Franklin, TN 37068
Tel: 615-794-4833
Email: miraclemilestones@comcast.net
VIRGINIA
Cerebral Palsy Ability Center
C/O Katalin Vizy, Director
5622G Ox Road, Suite 130
Fair Fax Station
Fairfax, VA 22039
Tel: (703) 920-0600 (year-round program)
Email: CPAC@cpabilitycenter.org
Website:www.cpabilitycenter.org
Cerebral Palsy Ability Center – Satellite Baltimore Office
c/o Katalin Vizy
Tel: (410) 666-2017
Email: katharos@comcast.net
Website:www.cpabilitycenter.org
Conductive Education of Galax
c/o Jean Felts
338 Coleman Lane
Galax, VA 24333 (summer prog.)
Tel: (540) 236-7897
Tel: (540) 728-3121
Email: beef388@yahoo.com
OUTSIDE THE USA
CANADA
Renfrew Education Services
c/o Wendy Woynillowicz, Director
2050 21st Street NE
Calgary, Alberta, Canada T2E6S5
Tel: (403) 291-5038
Fax: (403) 291-2499
Email: renfrew@renfreweducation.org
Website: www.renfreweducation.org
James Forliti
Purpose Conductive Education
40 Begbie Street
New Westminister, British Columbia, Canada V3M3L9
Cell: 778.885.9776
Tel: 604-526-2522
Fax: 604-526-6546
Email: james.forliti@purposesociety.org
Web-Site: www.purposesociety.org
Conductive Education ®
Ontario March of Dimes
10 Overlea Blvd.
Toronto, Ontario.
(Also offering services in London, ON and Nova Scotia)
M4H 1A4
Tel: 416-425-3463 ext 7259
Fax: 416-425-1920
Toll Free: 1-800-263-3463
Email: ce@dimes.on.ca
Website: www.dimes.on.ca
Ability Camp, Inc.
c/o Kevin Hickling, Director
R.R. #8, Picton
Ontario, Canada
KOK 2T0 (year around prog)
Tel: (800) 442-6992 or (613) 476-7332
Fax: (613) 476-1379
Email: Sandy@abilitycamp.com
Website: http://www.abilitycamp.com
The Movement Center of Manitoba, Inc.
c/o Margy Nelson, Executive Director
1646 Henderson Highway
Winnipeg, Manitoba, Canada R2G 1N7
Tel: (204) 489-2679
Email: mcmi@mts.net
Website: www.movementcentre.ca
December 1, 2006
Cerebral Palsy Spasticity – Explaining Selective Dorsal Rhizotomy Surgery (DSR)
Much scrutinized and one of the more successful means of treating spastic cerebral palsy is the SDR (selective doral rhizotomy) procedure.
SDR involves sectioning (cutting) of some of the sensory nerve fibers that come from the muscles and enter the spinal cord.
Selective dorsal rhizotomy is a surgical procedure performed to reduce leg muscle stiffness and spasticity in children who have cerebral palsy. Reduced spasticity can mean improved movement and ability to walk for some children. It may also help children confined to a wheelchair be able to sit for longer period more comfortably better able to maneuver their wheelchair. It can also help with increased movement in hands. For some kids they will be able to breathe more easily.
The surgery is usually performed when children are between the ages of 3 and 10.
One of the most comprehensive and complete explaining about the procedure can be found on the St. Louis Childrens’ Hospital. If you are interested in reading more about SDR please visit their web site, http://www.stlouischildrens.org/content/medservices/sdr/default.htm
November 29, 2006
Magnetic Molecular Energizer or MME Therapy
Magnetic Molecular Energizer is basically a treatment where the patient lays between two large strong magnets. Proponents of the therapy claim it will influence microcirculation, neurotransmitters, hormone release, etc. and result in overall improvement for people suffering from spinal cord injury, brain injury, stroke impairment, multiple sclerosis, muscular dystrophy, cerebral palsy, Parkinson’s disease, and Alzheimer’s disease.
The treatment is undergoing clinical trials. In its trial studies, results are being achieved with many neurological conditions where mainstream methods have previously failed. The patient lies on an open table between two large magnetic coils. In its trial studies, results are being achieved with many neurological conditions which have been untreatable with conventional methods. The patient lies on an open table between two large magnetic coils with the focal point above and below the head. The device is powered by a pure DC field provided by a specially designed AC/DC converter.
The theory of Magnetic Molecular is that the body is electromagnetic, composed of charged particles – atoms, protons, electrons and ions. When the human body parts in placed in magnetic field (a range between 3000 to 5000 gauss) the charged particles in the body parts in are affected by the magnetic force. There is an increase in velocity of orbiting electrons causing precession (change in the direction of the axis of a rotating object) leading to enhanced electron transfer, which is the basis of all chemical reactions in the body.
The treatment is quite controversial. One of the reasons many are dubious is because of the high price tag – around 50 dollars and hour. Treatment centers recommend a goal of 200 hours under the magnet – sleeping over night between the magnets.
Results have been anecdotal. Many swear by the treatment, others think it’s a waste of money.
More info:
http://www.healing-arts.org/children/cp/cpmagnetic.htm
http://www.devicewatch.org/reports/mme.shtml
September 7, 2006
Study Finds Most Cerebral Palsy Predates Labor
A new report from an article in the New York Times today reported on study that shows less than 10% of cerebral palsy cases were caused by asphxasia. There was a news conference in Albany outlining their findings.
The American College of Obstetricians and Gynecologists (ACOG) convened a Task Force on Neonatal Encephalopathy and Cerebral Palsy to collate and review the best scientific data available on the topic and to publish these findings.
A report issued today by the American College of Obstetricians and Gynecologists (ACOG) and the American Academy of Pediatrics (AAP) concludes that the majority of newborn brain injury cases do not occur during labor and delivery. Rather, most instances of neonatal encephalopathy and cerebral palsy are attributable to events occurring before labor begins.
The report indicates that most cases of cerebral palsy were caused not by brain injuries during labour and delivery, but other factors occurring during the pregnancy. The study concludes that it is maternal infection.
