April 13, 2007
Share Your Birth Story and Birthing Experience
Sharing your birth story with others can help. Often times other family members don’t understand the frustrations you can have when your birthing experience is traumatic. Reading other mom’s stories can also help, knowing others have been through similar situation as you.
Share your story and experience with other parents in our cerebral palsy support forum, and read more inspirational stories about cerebral palsy.
Botox Transforms Girl’s Life
This article from the Sudbury Star is a great example of how Botox therapy is literally changing the lives of thousands of children with cerebral palsy.
Sara Gauthier / For The Sudbury Star
With wide, curious eyes, Jenna Fournier looks around at all the people gathered in the gymnasium at St. Jerome School.
The cameras in particular seem to grab her attention.
Jenna, 5, is an example of what Botox can do for children with spastic cerebral palsy.
“Botox, for us, is a miracle drug,” says her mom, Jennifer Collin. “So, we’re hoping it lasts a long, long time.”
The little girl turns her head toward her mother and leans in. Her forehead rests on her mom’s and their noses touch.
A slight smile appears on Jenna’s face.
“If it wasn’t for the Botox, she’d probably be in a wheelchair right now,” says Collin. “She would not be independent the way she is.
And she’s walking with canes now, too. In the past two years, she went from not walking with a walker, to running with a walker, to walking.”Jenna started getting the Botox injections when she was just 18 months.
To read complete article visit The Sudbury Star
April 11, 2007
Supplemental Security Income (SSI) and Cerebral Palsy
The 4mychild.com website has excellent info on Supplemental Security Income (SSI) and help for your child with cerebral palsy.
Please visit Supplemental Security Income (SSI) and Cerebral Palsy or online contact a 4MyChild Live CareCenter Specialists for help understanding if your child is eligible.
Special Needs Daycare and Respite Care in Austin, Texas- Sammy’s House
Sammy’s House is a unique daycare, fully equipped to accommodate special needs children. The day care is all inclusive, both special needs and typically developing children.
The day care, which offers child care services for special needs kids with conditions ranging from cerebral palsy to down syndrome , just re-opened in a new 12,000 square foot location.
Sammy’s House offers medical care, therapy and learning under one roof. While primarily a day care center for working families, respite care can be arranged on an occasional basis.
Sammy’s House is a non-profit organization that makes every attempt to offer care to all children. Families help with fundraising to the best of their ability, which allows us to keep our rates competitive. Scholarships are available for qualifying families. For more information on current childcare rates and enrollment please contact info@sammyshouse.org or call 512-453-5258. More local assistance and recources for cerebral palsy and special needs children is available.
April 10, 2007
Hyperbaric Oxygen Therapy & Conductive Education Center Open House
The Jenny Rose Hyperbaric Oxygen Therapy & Conductive Education Center in Pennsylvania is having an open house Saturday April 21st from 2:00-4:00. If you are considering Conductive Education or HBOT (Hyperbaric Oxygen Therapy ) this is a great opportunity to see how it works and sign up for summer therapy programs.
The Conductor (teacher) will demonstrate how the
program is set up, and will do some hands on with some of the children.
HBOT is also available alone or combined with CE. Come and learn about the differences, both
chambers are hard chambers with 100% medical grade oxygen. Every state has different laws, but if you are within driving distance it is worth while to come,
perhaps you could get some ideas. Some parents in Pennsylvania are
getting Conductive Education payed for by the school districts here, as
there ESY program. FSS and waiver funds can also be used.
For more information please contact support@thejennyrosecenter.com
April 6, 2007
Online Therapy For Cerebral Palsy: Project ULTrA
Upper Limb Training for Hemiplegic Cerebral Palsy Online
University of Michigan kinesiology department is offering therapy for adults and teenagers with cerebral palsy- online!
Called Project ULTrA (Upper Limb Training and Assessment), the program allows therapy to take place in front of a computer screen using streamed video and works on upper limb strength, flexibility and movement. The software uses virtual trainers AS WELL AS real-life experts at the Motor Control Lab to complete movement-based therapy programs. The program also collects data to determine how well the in-home therapy is working.
If you wold like more information about Project ULTrA you can contact
Colleen Lewis, Ph. D.
Laboratory Phone: (734)-763-5829
E-mail: ultra@umich.edu
Postal Address
The Division of Kinesiology
University of Michigan
401 Washtenaw Ave.
Ann Arbor , MI , 48109-2214
website: http://www.med.umich.edu/opm/newspage/2007/hmultra.htm
